I have IBM.
It does not have me.
One woman’s journey with Inclusion Body Myositis.
Final Visit to UC Irvine
Welcome to this blog post. In today’s installment, Linda talks about her final visit to Irvine as part of an observational trial.
New Year Resolutions -Again
Welcome to this blog post. Today’s installment says Happy New Year and reveals Linda’s one and only resolution for the year. Enjoy.
Great Gift Ideas
Welcome to this blog post. In today’s installment, Linda shares some great gift ideas for folks with IBM or other ongoing medical issues.
Improving Balance
Welcome to this blog post. In today’s installment, Linda talks about what’s been helping her maintain her balance.
The Ups and Downs of Volunteering
Linda talks about her experiences trying to find a good volunteering opportunity that works for her.
Don’t Dismiss New Symptoms
Sherri talks about reporting new symptoms to your care team instead of assuming they are par for the course in your disease or simply caused by getting older.
MyoCon 2025
In today’s post, Linda shares her experiences at the 2025 Myositis Association Patient Conference in Dallas.
Conversations, Libraries, and Laughter: My Tools Against Depression
Welcome to this blog post. Today’s installment Linda shares some of the steps she’s taking to work through a feeling of depression.
Support Comes in All Flavors
Welcome to this blog post. In it, Linda talks about where she finds support in her life.
When Life Hands You Lemons (and a rare disease)
Welcome to this blog post. In today’s installment, Linda discusses downsizing possessions to make life more manageable and enjoyable.
Guest Post: Linda’s Husband
Welcome to this blog post. In today’s blog, we hear from Linda’s husband Fred about his experiences with Linda’s IBM.
Latest Visit to UC Irvine
Welcome to this blog post. In today’s installment, Linda shares how her latest trip to Irvine went as part of the INSPIRE study.
Can Diet Help with IBM?
Welcome to this blog post. In today’s installment, Sherri talks about a whole foods plant-based diet and how it might help with inflammation.
Deciding to Remodel or Buy New, More Accessible Home
Welcome to this blog post. Today Linda talks about some key things to keep in mind around remodeling your house to accommodate changes in mobility.
Care Team: Clinic, HBOT, & Neuro PT
Welcome to this blog post. Today’s installment covers the three big-picture things Linda has been doing to manage her IBM.
Unnecessary Stressors
Welcome to this blog post. Today Linda talks about stressors in our lives that are within our control, and how we might go about shrinking them.
Vagus Nerve Part II
Welcome to this blog post. Linda shares even more ways to stimulate your vagus nerve.
Vagus Nerve Stimulation
Welcome to this blog post. Today’s installment, Linda talks about vagus nerve stimulation as a possible way to help with IBM.