I have IBM.
It does not have me.
One woman’s journey with Inclusion Body Myositis.
Surviving the Holidays
In today’s post, Linda talks about dealing with holidays when you have physician considerations like IBM.
Best TV Ideas
Welcome to this blog post where Linda talks about the great stuff she finds on YouTube.
Technology: The Unsung Sidekick in Life With IBM
Welcome to this blog post. Today Linda talks about tech helpers. :-)
My Ordinary Day
Welcome to this blog post. Linda talks about living in the moment and appreciating the small joys in life.
Advocating for Your Own Care: An ICU Wake-Up Call
Welcome to this blog post. Today’s installment has Linda talking about advocating for your own care.
Change Your Shirt
In this post, Linda talks about how every day needs a different approach.
The Biopsy Question: Do We Really Need to Cut Into a Muscle to Diagnose IBM?
In this blog post, Linda talks about muscle biopsies.
Setting the Pace: Getting a Surprise Pace Maker
Welcome to this blog post. Today’s installment has Linda talking about her new pacemaker.
What You Need to Know About Traveling by Air if You Have IBM or a Disability
Today Linda talks about some ways to smooth air travel when you are living with chronic disease or disability.
When IBM Hurts: Why Pain Deserves to Be Part of the Conversation
In today’s post, Linda talks about pain in IBM.
Pause, Question, Repeat: Why Second Opinions Are a Lifeline in IBM and Rare Disease Care
In today’s post, Linda talks about getting second opinions.
When Friends Need your Help: Navigating How Much of Yourself You Can Give
In this post, Linda talks about acknowledging boundaries when you need them and how to still be there for your friends when they need you.
Strong Advocacy Leads to Answers
In this blog post, Sherri talks about a win in Linda’s healthcare around repeated small strokes - we’ve finally got answers!
Why You Might Want to Try Blogging
In this blog post, Linda shares why she writes this blog, and why you might want to try writing one, too.
Swipe right for a neurologist
Welcome to this blog post. Today Linda shares her thoughts on finding a good neurologist (or any doctor, for that matter).
Study at the University of Texas at Tyler
Welcome to this blog post. Today Linda shares her experiences at an interesting informational trial through U of Texas at Tyler.
Final Visit to UC Irvine
Welcome to this blog post. In today’s installment, Linda talks about her final visit to Irvine as part of an observational trial.